EDS Patient in Box image

EDS can manifest in different ways and is not always obvious2,4,5

  • Inability to stay awake and alert2
  • Lapses in vigilance or concentration2,5
  • Patients may describe “tiredness” or “fatigue”5
  • Irrepressible need for sleep2
  • Unintended lapses into drowsiness or sleep2

Ask your patients about EDS at every visit

Do you fight to stay awake and alert throughout the day?2

Do you feel a constant need to sleep that you just can’t shake?2

Do you feel likely to doze off in everyday situations like when you are at work, or riding in a car?2,6

Do you wake up feeling refreshed, but it doesn’t last?2

Do you find you can’t do certain activities because of your EDS?1,2

Cataplexy Patient in Box image

Cataplexy occurs in about 70% of people with narcolepsy7 but may be difficult to recognize1,7,8

  • Cataplexy commonly affects facial muscles, with abrupt interruption of smile or facial expression9
    • Drooping of the eyelids9
    • Muscle weakness in the face or neck2,9
    • Mouth opening or tongue sticking out9
    • Facial jerks/grimace2,9
  • Patients may describe “losing muscle control,” “clumsiness,” or loss of grip10-12
  • Patients may not report cataplexy because they may not realize their muscle weakness is not normal8,13

Patients may knowingly or unknowingly avoid situations that could trigger symptoms3,14,15

Ask your patients about cataplexy at every visit

Do you experience sudden periods of muscle weakness with strong emotions (e.g., fear, laughter, surprise) or certain situations?2,13

Do you notice weakness in your face or neck, like mouth opening or droopy eyelids?2,9

Do you ever feel your knees buckle or give out?16

Do you sometimes drop things or feel clumsy?11,16

Do you avoid emotions or certain situations because of your cataplexy?3,14,15